garnigal: (Default)
garnigal ([personal profile] garnigal) wrote2019-07-25 09:28 am
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Shitty news

My mom has been in hospital for a week. She's been sick for weeks, but thought it was just related to a vertigo syndrome she has. Finally was losing too much weight and not drinking enough, so Dad took her up and they kept her, waiting for a free bed in our major hospital to do some pretty aggressive testing.

Got the diagnosis yesterday - multiple myelomoa, which is cancer of the plasma cells. She starts treatment as soon as possible, and that treatment may include everything from chemo to stem cell therapy to a bone marrow transplant.

It's treatable, but incurable. 49% of people hit the 5 year survival marker, but most of those are diagnosed early. For Mom's stage (I'm guessing based on her symptoms), the average life span after diagnosis is 29 months.

Hopefully she is well above average.

[identity profile] brunettepet.livejournal.com 2019-07-25 01:41 pm (UTC)(link)
Sorry to hear this. She and your family will be in my thoughts *hugs*

[identity profile] garnigal.livejournal.com 2019-07-26 01:03 pm (UTC)(link)
Thank you.

[identity profile] slaymesoftly.livejournal.com 2019-07-25 01:55 pm (UTC)(link)
Oh my god. I'm so sorry. That is shitty news. Hoping along with you that she is well above-average.

[identity profile] garnigal.livejournal.com 2019-07-26 01:04 pm (UTC)(link)
Thanks, I'm starting to adjust. More thinking about what she needs, less about what I have to lose.
ext_106804: (Default)

[identity profile] teragramm.livejournal.com 2019-07-25 02:00 pm (UTC)(link)
I'm so sorry to hear this. Sending good thoughts your mom's way.

[identity profile] garnigal.livejournal.com 2019-07-26 01:04 pm (UTC)(link)
Thank you.
rahirah: (Default)

[personal profile] rahirah 2019-07-25 02:32 pm (UTC)(link)
I'm so sorry to hear that. Best wishes for your Mom and for you.

[identity profile] garnigal.livejournal.com 2019-07-26 01:04 pm (UTC)(link)
Thanks.

FOAF

[identity profile] executrix.livejournal.com 2019-07-25 03:05 pm (UTC)(link)
This is a "friend of a friend" report, not direct, but my friend's ex-husband, who is otherwise not in great shape, was diagnosed with multiple myeloma and quickly went into complete remission after chemo.

Of course cancer is never good news, but there do seem to be multiple lines of effective treatment for MM.

Re: FOAF

[identity profile] garnigal.livejournal.com 2019-07-26 12:57 pm (UTC)(link)
She went to pick up meds tonight, and the volunteer at the checkin desk saw her forms and said "Myeloma?" They confirmed and he grinned. He was diagnosed 14 years ago, and is getting a second stem cell transplant sometime this year. So that gave us all some hope. We just hope she responds to treatment as well as he did.

She's home now, which is good. Hopefully she'll be able to do her injections locally (the tiny hospital in our town of 2900 is a regional cancer center. The hospital network is tricking the gov't into keeping all the small town hospitals open by making each one a 'specialty center'. Very clever!)

Re: FOAF

[identity profile] velvetwhip.livejournal.com 2019-07-26 01:10 pm (UTC)(link)
Okay, that hospital network is AWESOME! So glad that your local one is the cancer center.


Gabrielle

Re: FOAF

[identity profile] garnigal.livejournal.com 2019-07-26 02:13 pm (UTC)(link)
It certainly comes in handy given the family history on mom's side.

Re: FOAF

[identity profile] executrix.livejournal.com 2019-07-26 01:30 pm (UTC)(link)
Doctors spend a large part of every visit playing with their electronic devices anyway, which means that every Local MD can be on the line consulting Hotshot Fancy Superspecialist, who will have access to all of the patient's records.

Not the same kind of cancer, but Ruth Bader Ginsburg has been posting recently that when she was diagnosed, a Republican Senator said that she was obviously not long for this world, and good riddance. That was five years ago, and meanwhile the senator has died of a stroke.

Re: FOAF

[identity profile] garnigal.livejournal.com 2019-07-26 02:15 pm (UTC)(link)
RBG is an unstoppable force and an immovable object, all in one.

I used to work for a healthcare software company. Our software allowed medical images to be stored, compressed, moved around - all without any loss of image quality on uncompression. There are lots of companies that do the same thing, but just having the ability within the hospital network is a hell of a game changer.

[identity profile] author-by-night.livejournal.com 2019-07-25 06:56 pm (UTC)(link)
*Tight hugs* I'm so very sorry for the hard news. I hope she is well above that mark as well.
Edited 2019-07-25 18:57 (UTC)

[identity profile] garnigal.livejournal.com 2019-07-26 01:05 pm (UTC)(link)
Thanks. She's always been an overachiever :)

[identity profile] 1-rhiannon-1.livejournal.com 2019-07-25 07:06 pm (UTC)(link)
I'm so sorry to hear this! My thoughts to you and your family <3

[identity profile] garnigal.livejournal.com 2019-07-26 01:05 pm (UTC)(link)
Thank you.

[identity profile] zhelana.livejournal.com 2019-07-25 09:00 pm (UTC)(link)
I'm so sorry.

[identity profile] garnigal.livejournal.com 2019-07-26 01:05 pm (UTC)(link)
Thanks

[identity profile] trepkos.livejournal.com 2019-07-25 09:34 pm (UTC)(link)
So sorry - that really sucks.

[identity profile] garnigal.livejournal.com 2019-07-26 01:05 pm (UTC)(link)
Thank you.

[identity profile] snogged.livejournal.com 2019-07-25 10:31 pm (UTC)(link)

That’s scary. Praying for you and your family, especially your mom!

[identity profile] garnigal.livejournal.com 2019-07-26 01:05 pm (UTC)(link)
Thank you.

[identity profile] velvetwhip.livejournal.com 2019-07-25 11:14 pm (UTC)(link)
I am rooting for her with all my might. *hugs you hard*


Gabrielle

[identity profile] velvetwhip.livejournal.com 2019-07-26 01:09 pm (UTC)(link)
I am praying for you and your family.


Gabrielle
desdemonaspace: by <lj user="Teragramm"> (Default)

[personal profile] desdemonaspace 2019-07-26 12:21 am (UTC)(link)
Oh, honey! Shitty news indeed. I hope your mom is in the 'well above average' group.

You know, I'm a cancer survivor myself. I'm here to tell ya, it can go MUCH better than what you fear.

[identity profile] garnigal.livejournal.com 2019-07-26 12:59 pm (UTC)(link)
Even the hematologist is talking about a 15 year treatment plan, so I may have jumped the gun. Google is not always your friend.

I know it's going to be a miserable road navigating treatment, but hopefully she responds well.
desdemonaspace: (Flicka sailboat)

[personal profile] desdemonaspace 2019-07-26 03:57 pm (UTC)(link)
I feel for you. She's so lucky to have you.

I navigated the shoals myself, and it was not fun.
jerusha: (m/s here for you)

[personal profile] jerusha 2019-07-26 01:27 am (UTC)(link)
I hope she is well above average and proves every average wrong! *hugs*

[identity profile] garnigal.livejournal.com 2019-07-26 01:03 pm (UTC)(link)
Thanks. It functions somewhat like an autoimmune disorder, since it's cancer of the plasma cells. The big symptom that sent her to hospital in the first place was low kidney function. Apparently the abnormal bone marrow creates abnormal blood cells, which in turn creates abnormal antibodies which then attack the kidneys. Very interesting from a scientific perspective, much less so from a personal perspective.

It means we'll have to be super careful about our own germs, which should be fun with 4 little girls 10 and under.

[identity profile] orangerful.livejournal.com 2019-07-27 03:59 am (UTC)(link)
oh no, I am so sorry. I hope the treatments go well. Don't forget to take care of yourself too, this will be a trying time for everyone, I am sure. **HUGS**

[identity profile] badfalcon.livejournal.com 2019-07-29 10:23 am (UTC)(link)
Oh hell, I'm so sorry to hear that. Fingers crossed for the treatment and being above average *hugs*

[identity profile] saratinia.livejournal.com 2019-08-08 01:29 am (UTC)(link)
Sorry to hear this news, the stories you tell of your family tell me she is tough and will give the good fight.